Tuesday, July 1, 2025

Autism; parents face challenges too

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Autism is a complex neurological condition that affects the child’s social interaction, communication, and behaviour. A child with autism can present unique challenges and demands for parents and caregivers. It can be difficult to navigate the often-complex needs of children with autism, such as communication difficulties, social interaction challenges, and sensory sensitivities.

It’s important to remember that autism is a complex neurological disorder with no known single cause and that parents are not to be blamed for their child’s condition. Additionally, it is common for parents to experience feelings of frustration and stress when caring for a child with autism, and seeking out support and resources can help to alleviate these feelings.

Unfortunately, there is still a great deal of stigma surrounding autism and individuals on the autism spectrum. This stigma can manifest in a variety of ways, including negative stereotypes, discrimination, and social exclusion. Children with autism may struggle to make friends and form social connections, which can lead to feelings of isolation and loneliness. The stigma surrounding autism can lead to limited opportunities for education, employment, and social engagement, which can have long-term consequences for children on the spectrum and their families.

It’s not uncommon for parents of children with autism to experience feelings of guilt. This can stem from a variety of factors, including feelings of responsibility for their child’s condition and frustration with the challenges of parenting a child with autism. Learning more about autism and counselling the family can help to dispel myths and misconceptions, and help them to understand the complexities of the disorder. Connecting with other parents of children with autism (parent’s support groups) can provide a sense of community and support, and help the families to feel less isolated. It is important to focus on the child’s strengths and talents, and their positive attributes rather than dwelling on their challenges.

The initial shock, denial, and anger on knowing that their child has special needs can cause a lot of hardships to the caregivers but with regular counselling, the parents learn to accept and do the best for their child.

Dr. Premila Harimohan, consultant, child development centre, Amrita Hospital shares, “It is very important to remember that early detection and intervention including regular occupational therapy, speech therapy, behavioural therapy, and a good Montessori school will make a great difference to these children and improve their social and communication abilities. This is because of the plasticity of the brain in a young child and the fact that the maximum brain development is in the first few years of life. This means that the child needs to be taken to a specialised centre regularly and the family has to find the time amidst their hectic schedule for this.”

One must remember that these families face financial burdens because of this and most of the time one of the parents has to sacrifice their work and career to train their child with special needs.

Education can be a major concern for the parents of children with autism. It’s important to remember that every child with autism is unique, and there is no one-size-fits-all approach to education. Working with the child’s teachers and school administrators to develop an Individualized Education Plan (IEP) that meets the child’s unique needs and accommodates their challenges is essential as education is a partnership between parents, teachers, and administrators, and working together can help to ensure that the child with autism receives the support and resources they need to succeed.

It is essential for parents and caregivers to seek support and resources to help them manage the challenges of raising a child with autism. The family is the greatest strength and grandparents, siblings and other family members can play a great role in training a child with autism other than the parents.

Every autistic child is unique, and their strengths and challenges can vary widely. Some autistic children may excel in areas like mathematics, science, or art, while others may struggle with sensory processing or communication. The key to helping autistic children succeed is to identify their strengths and challenges and to provide them with individualized support that meets their specific needs. This may include things like therapy, specialized educational programs, or assistive technology.

Training the child in art and sport can be challenging but will benefit the child

Many children with autism have strengths and talents that should be celebrated and encouraged. With the right support and resources, autistic children can absolutely succeed in many areas of their lives, including education, employment, and social relationships.

It’s also important to recognize that success looks different for everyone. For some autistic children, success may mean excelling academically or professionally, while for others, it may mean developing meaningful relationships or achieving personal goals.

In short, with the right support and resources, children with autism can absolutely succeed and thrive in many areas of their lives.

The issues faced by families need to be understood by society. Advocating for policies and governmental reforms to create a more inclusive and accepting society for children with autism is needed. The child with autism has special needs and the family can face the challenges with the right professional guidance from doctors, teachers, therapists and parent support groups.

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